Mal de Debarquement

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Mal de Debarquement is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • MdDS

Disorder Subdivisions

  • None

General Discussion

Mal de debarquement syndrome (MdDS) is a rare and little understood disorder of the body's balance system (vestibular system) and refers to the rocking sensation and/or sense of imbalance that persists for an excessive length of time after an ocean cruise, plane flight or other motion experience. Most people after exposure to an ocean trip or long airplane ride will experience "motion" after the event is over and for a short period of time. But for persons with MdDS, these sensations may last for six months or a year or even many years. Symptoms may diminish in time or periodically disappear and reappear after days, months, or years, sometimes after another motion experience or sometimes spontaneously. This syndrome is probably more common than the literature might lead us to believe, as the level of awareness in the general population as well as among health personnel is very low.

The disproportionate length of time over which the discomfort persists is normally unaccompanied by nausea, nor is it responsive to motion-sickness drugs.

For reasons that are not understood, women are overwhelmingly more likely to come down with MdDS than are men. However, most studies so far have disavowed hormones as a cause.

Resources

Vestibular Disorders Association (VEDA)
P.O. Box 13305
Portland, OR 97213
USA
Tel: (503)229-7705
Fax: (503)229-8064
Tel: (800)837-8428
Email: veda@vestibular.org
Internet: http://www.vestibular.org

EAR (Education and Auditory Research Foundation
P.O. Box 330867
Nashville, TN 37203
Tel: (615)627-2724
Tel: (800)545-4327
TDD: (615)284-7849
Email: suzanne@earfoundation.org
Internet: http://www.earfoundation.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

MdDS Balance Disorder Foundation
22406 Shannondell Drive
Audubon, PA 19403
USA
Tel: (215)542-9167
Fax: (210)641-6077
Email: mddsfoundation@yahoo.com
Internet: http://www.mddsfoundation.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston, VA 20190
Tel: (703)790-8466
Fax: (703)790-8631
Tel: (800)222-2336
Email: infoaud@audiology.org
Internet: http://www.audiology.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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