Hemimegalencephaly

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Hemimegalencephaly is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Unilateral Megalencephaly
  • Macrencephaly

Disorder Subdivisions

  • None

General Discussion

Hemimegalencephaly is a rare neurological condition in which one-half of the brain, or one side of the brain, is abnormally larger than the other. As a consequence of this imbalance, the unusual and enlarged brain tissue causes frequent seizures, usually followed with mental retardation. Hemimegalencephaly may occur as an isolated finding in an infant or it may be associated with other syndromes.

Surgery is often prescribed to control the seizures. If the affected side is surgically removed (hemispherectomy), the remaining healthy side of the brain may gradually take over the functions whose control has been lost. The ability for one side of the brain to take over the function of the other is known as "plasticity".

Resources

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Hemispherectomy Foundation
P.O. Box 1239
Aledo, TX 76008
Tel: (817)307-9880
Email: info@hemifoundation.org
Internet: http://hemifoundation.intuitwebsites.com/welcome.html

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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