Thoracic Outlet Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Thoracic Outlet Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • TOS

Disorder Subdivisions

  • arterial thoracic outlet syndrome
  • Paget-Schroetter syndrome
  • neurogenic thoracic outlet syndrome
  • nonspecific thoracic outlet syndrome
  • vascular thoracic outlet syndrome
  • venous thoracic outlet syndrome
  • pectoralis minor syndrome

General Discussion

Thoracic outlet syndrome (TOS) is a condition presenting with arm complaints of pain, numbness, tingling and weakness. The cause is pressure in the neck against the nerves and blood vessels that go to the arm.
There are three types of TOS depending on which structure is being compressed:
1. Neurogenic TOS-Bnerve compression comprises 95% of all TOS patients
2. Venous TOSB-compression of the main vein comprises 4% of all TOS patients
3. Arterial TOS-Bcompression of the main artery comprises less than 1% of all TOS patients
4. Vascular TOS is a term sometimes used but there is no such entity as vascular TOS. The term refers to TOS due either to compression of an artery or vein (arterial or venous TOS). The appropriate terms, arterial or venous, should be employed and the term vascular discarded.
The three types of TOS are very different from each other. Each will be described separately.

Resources

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
USA
Tel: (916)632-0922
Fax: (916)632-3208
Tel: (800)533-3231
Email: ACPA@pacbell.net
Internet: http://www.theacpa.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

United Brachial Plexus Network (UBPN)
1610 Kent Street
Kent, OH 44240
Fax: (866)877-7004
Tel: (866)877-7004
Email: info@ubpn.org
Internet: http://www.ubpn.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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