Chronic Fatigue Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Chronic Fatigue Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • CFIDS
  • CFS
  • Chronic Fatigue and Immune Dysfunction Syndrome

Disorder Subdivisions

  • None

General Discussion

Chronic fatigue syndrome (CFS) is a complex disorder characterized by profound fatigue and other related symptoms. Standards for the diagnosis of CFS have been defined by researchers at the Centers for Disease Control and Prevention (CDC). These include excessive fatigue that does not respond to bed rest, combined with four or more of the following symptoms: substantial impairment in short-term memory or concentration; sore throat; tender lymph nodes; muscle pain; pain in multiple joints without redness or stiffness; headaches of a new type, pattern or severity; unrefreshing sleep; and a general feeling of ill health (malaise) for up to 24 hours after exertion.

Chronic fatigue syndrome has generated significant debate and controversy in the medical community. It remains a poorly understood and potentially debilitating illness. Scientists believe chronic fatigue syndrome is not contagious and that multiple factors including immunological, genetic, environmental ones working in combination cause the development of chronic fatigue syndrome. Laboratory tests (blood, urine, etc.) are of little value in diagnosing the syndrome.

Resources

National Chronic Fatigue Syndrome & Fibromyalgia Association
P.O. Box 18426
Kansas City, MO 64133
Tel: (816)737-1343
Fax: (816)524-6782
Email: information@ncfsfa.org
Internet: http://www.ncfsfa.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Centers for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
Tel: (404)639-3534
Tel: (800)311-3435
Email: http://www.cdc.gov/netinfo.htm
Internet: http://www.cdc.gov/

NIH/National Institute of Allergy and Infectious Diseases
6610 Rockledge Drive
MSC 6612
Bethesda, MD 20892-6612
Tel: (301)496-5717
Fax: (301)402-3573
TDD: (800)877-8339
Internet: http://www.niaid.nih.gov/

American Academy of Allergy, Asthma and Immunology
555 East Wells Street, Suite 1100
Milwaukee, WI 53202-3823
Tel: (414)272-6071
Fax: (414)276-3349
Tel: (800)822-2762
Email: info@aaaai.org
Internet: http://www.aaaai.org

CFIDS Association of America, Inc.
PO Box 220398
Charlotte, NC 28222-0398
USA
Tel: (704)365-2343
Fax: (704)365-9755
Tel: (800)442-3437
Email: cfids@cfids.org
Internet: http://www.cfids.org

National CFIDS Foundation, Inc.
103 Aletha Rd
Needham, MA 02492-3931
Tel: (781)449-3535
Fax: (781)449-8606
Email: gailronda@aol.com
Internet: http://www.ncf-net.org

CF Alliance
P.O. Box 9204
Bardonia, NY 10954
Tel: (845)548-0313
Fax: (845)792-0880
Email: cf_alliance@ yahoo.com
Internet: www.cf-alliance.org

Wisconsin Chronic Fatigue Syndrome Association, Inc.
747 Lois Drive
Sun Prairie, WI 53590
USA
Tel: (608)834-1001
Email: wisfsme@yahoo.com
Internet: http://www.wicfs-me.org

New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
Suite 937
Milwaukee, WI 53202
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Internet: http://www.new-horizons.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community
Tel: (919) 552-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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