Blepharospasm, Benign Essential
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Blepharospasm, Benign Essential is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Benign essential blepharospasm (BEB) is a rare neurological disorder in which affected individuals experience involuntary muscle spasms and contractions of the muscles around the eyes. These spasms come and go (intermittent). Symptoms may begin as eye twitching, blinking and/or irritation. Eventually, BEB causes involuntary closure of the eyes. The exact cause of BEB is unknown. The disorder is one of a group of disorders collectively known as dystonia.
Dystonia is a group of movement disorders that vary in their symptoms, causes, progression, and treatments. This group of neurological conditions is generally characterized by involuntary muscle contractions that force the body into abnormal, sometimes painful, movements and positions (postures).
WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
Benign Essential Blepharospasm Research Foundation, Inc.
P.O. Box 12468
Beaumont, TX 77726-2468
Dystonia Medical Research Foundation
1 East Wacker Drive
Chicago, IL 60601-1905
National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
89 Albert Embankment, 1st Floor
London, Intl SE1 7TP
Tel: 0845 458 6211
Fax: 0845 458 6311
Tel: 0845 458 6322
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
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