Sudden Infant Death Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Sudden Infant Death Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Cot Death
  • Crib Death
  • SIDS

Disorder Subdivisions

  • None

General Discussion

Sudden infant death syndrome (SIDS) is the sudden death of an infant under the age of 1 year that remains unexplained after careful review of the history, death scene investigation, and thorough autopsy. In 2005, it was listed as the third leading cause of death in infants in the United States. Causes of SIDS are considered to be multifactorial. The triple risk hypothesis describes the presence of three risk factors that, when overlapping, predispose a baby to SIDS. These include an environmental trigger/stress, a critical developmental period, and an underlying vulnerability . Physician-scientists and scientists are studying neuropathological tissue and genetic material from SIDS victims to ascertain factors that might be responsible for heightening an infant's vulnerability to SIDS. Others are performing physiologic studies on infants known to have an increased risk for SIDS. Basic scientists are studying animal models that might provide insight into mechanisms responsible for SIDS. Current clinical management targets improving education for families and caregivers regarding known modifiable environmental stressors (risk factors) (see below).
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Resources

First Candle-SIDS Alliance
1314 Bedford Avenue
Suite 210
Baltimore, MD 21208
Tel: (410)653-8226
Fax: (410)653-8709
Tel: (800)221-7437
Email: info@firstcandle.org
Internet: http://www.firstcandle.org

National SIDS and Infant Death Resource Center
8280 Greensboro Drive
Suite 300
McLean, VA 22102
Tel: (703)821-8955
Fax: (703)821-2098
Tel: (866)866-7437
Email: sids@circlesolutions.com
Internet: http://www.sidscenter.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

American Sudden Infant Death Syndrome Institute
509 Augusta Drive
Marietta, GA 30067
USA
Tel: (770)426-8746
Fax: (770)426-1369
Tel: (800)232-7437
Email: prevent@sids.org
Internet: http://www.sids.org

SIDS Educational Services, Inc.
PO Box 2426
Cheverly, MD 20784
Tel: (301)322-2620
Fax: (301)322-9822
Email: SIDSES@aol.com
Internet: http://www.sidssurvivalguide.org

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Tel: (301)496-5133
Fax: (301)496-7101
Internet: http://www.nichd.nih.gov/

Foundation for the Study of Infant Deaths
11 Belgrave Road
London, Intl SW1V 1RB
United Kingdom
Tel: 020 7802 3200
Fax: 0870 787 0725
Tel: 0870 787 0554
Email: helpline@fsid.org.uk
Internet: http://fsid.org.uk/Page.aspx?pid=191

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Infants Remembered In Silence, Inc. (IRIS)
101 Third Street NW
Faribault, MN 55021
Tel: (507)334-4748
Fax: (507)334-4748
Email: support@irisremembers.com
Internet: http://www.irisRemembers.com

Share Pregnancy & Infant Loss Support, Inc.
402 Jackson Street
Saint Charles, MO 63301
Tel: (636)947-6164
Fax: (636)947-7486
Tel: (800)821-6819
Email: info@nationalshare.org
Internet: http://www.nationalshare.org

Sudden Infant Death Services of Illinois, Inc.
710 E. Ogden Ave.
Suite 550
Naperville, IL 60563
Tel: (630)305-7300
Fax: (630)305-4773
Tel: (800)432-7437
Email: pam@sidsillinois.org
Internet: http://www.sidsillinois.org

CJ Foundation for SIDS, Inc.
Don Imus - WFAN Pediatric Center
Hackensack University Medical Center
Hackensack, NJ 07601
Tel: (201)996-5111
Fax: (201)996-5326
Tel: (888)825-7437
Email: info@cjsids.org
Internet: http://www.cjsids.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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