Sudden Infant Death Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Sudden Infant Death Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Sudden infant death syndrome (SIDS) is the sudden death of an infant under the age of 1 year that remains unexplained after careful review of the history, death scene investigation, and thorough autopsy. In 2005, it was listed as the third leading cause of death in infants in the United States. Causes of SIDS are considered to be multifactorial. The triple risk hypothesis describes the presence of three risk factors that, when overlapping, predispose a baby to SIDS. These include an environmental trigger/stress, a critical developmental period, and an underlying vulnerability . Physician-scientists and scientists are studying neuropathological tissue and genetic material from SIDS victims to ascertain factors that might be responsible for heightening an infant's vulnerability to SIDS. Others are performing physiologic studies on infants known to have an increased risk for SIDS. Basic scientists are studying animal models that might provide insight into mechanisms responsible for SIDS. Current clinical management targets improving education for families and caregivers regarding known modifiable environmental stressors (risk factors) (see below).
First Candle-SIDS Alliance
1314 Bedford Avenue
Baltimore, MD 21208
National SIDS and Infant Death Resource Center
8280 Greensboro Drive
McLean, VA 22102
National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
American Sudden Infant Death Syndrome Institute
509 Augusta Drive
Marietta, GA 30067
SIDS Educational Services, Inc.
PO Box 2426
Cheverly, MD 20784
NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
Bethesda, MD 20892
Foundation for the Study of Infant Deaths
11 Belgrave Road
London, Intl SW1V 1RB
Tel: 020 7802 3200
Fax: 0870 787 0725
Tel: 0870 787 0554
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Infants Remembered In Silence, Inc. (IRIS)
101 Third Street NW
Faribault, MN 55021
Share Pregnancy & Infant Loss Support, Inc.
402 Jackson Street
Saint Charles, MO 63301
Sudden Infant Death Services of Illinois, Inc.
710 E. Ogden Ave.
Naperville, IL 60563
CJ Foundation for SIDS, Inc.
Don Imus - WFAN Pediatric Center
Hackensack University Medical Center
Hackensack, NJ 07601
For a Complete Report
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html