Spasmodic Torticollis

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Spasmodic Torticollis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Spasmodic Wryneck
  • Torticollis
  • Idiopathic Cervical Dystonia
  • ICD
  • Cervical Dystonia

Disorder Subdivisions

  • Tonic Spasmodic Torticollis
  • Clonic Spasmodic Torticollis
  • Mixed Tonic and Clonic Torticollis

General Discussion

Spasmodic Torticollis, also known as cervical dystonia, is a form of dystonia characterized by intermittent spasms of the neck muscles resulting in involuntary rotation and tilting of the head. These movements are frequently painful. There are three different varieties of the disorder: tonic, causing sustained turning of the head to one side; clonic, causing shaking movements of the head; and mixed tonic and clonic, involving both kinds of movements. The exact cause of this disorder is usually unknown, and it tends to appear in adults.

Resources

WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
USA
Tel: (212)875-8312
Fax: (212)875-8389
Email: wemove@wemove.org
Internet: http://www.wemove.org

Dystonia Medical Research Foundation
1 East Wacker Drive
Suite 2810
Chicago, IL 60601-1905
United States
Tel: (312)755-0198
Fax: (312)803-0138
Tel: (800)377-3978
Email: dystonia@dystonia-foundation.org
Internet: http://www.dystonia-foundation.org

National Spasmodic Torticollis Association
9920 Talbert Avenue
Fountain Valley, CA 92708
Tel: (714)378-9837
Fax: (714)378-9830
Tel: (800)487-8385
Email: NSTAmail@aol.com
Internet: http://www.torticollis.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

Dystonia Society
89 Albert Embankment, 1st Floor
Vauxhall
London, Intl SE1 7TP
United Kingdom
Tel: 0845 458 6211
Fax: 0845 458 6311
Tel: 0845 458 6322
Email: angie@dystonia.org.uk
Internet: http://www.dystonia.org.uk

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Spasmodic Torticollis Dystonia, Inc
PO Box 28
Mukwonago, WI 53149
Tel: (262)560-9534
Fax: (262)560-9535
Tel: (888)445-4588
Email: info@spasmodictorticollis.org
Internet: http://www.spasmodictorticollis.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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