Polymyositis

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Polymyositis is not the name you expected.

Disorder Subdivisions

  • Primary Idiopathic Polymyositis
  • Childhood Polymyositis
  • Polymyositis Associated with Malignant Tumors
  • Polymyositis Associated with Sclerodermatomyositis
  • Polymyositis Associated with Mixed Connective Tissue Disease (Overlap Syn)

General Discussion

Polymyositis is a systemic connective tissue disorder characterized by inflammatory and degenerative changes in the muscles, leading to symmetric weakness and some degree of muscle atrophy. The areas principally affected are the hip, shoulders, arms, pharynx and neck.

Resources

Myositis Association
1737 King Street
Suite 600
Alexandria, VA 22314
USA
Tel: (703)299-4850
Fax: (703)535-6752
Tel: (800)821-7356
Email: tma@myositis.org
Internet: http://www.myositis.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

Miller Frederick W., M.D.
National Institutes of Health
Molecular Immunology Lab. CBER,FD
8800 Rockville Pike
Bldg. 29, Room 507
Bethesda, MD 20892
Tel: (301)496-6913

Muscular Dystrophy Association
3300 E. Sunrise Dr
Tucson, AZ 85718
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: mda@mdausa.org
Internet: http://www.mda.org/

Myositis Support Group
146 Newtown Road
Woolston
Southampton, Intl S019 9HR
United Kingdom
Tel: 023 8044 9708
Fax: 023 8039 6402
Email: msg@myositis.org.uk
Internet: http://www.myositis.org.uk

Poltz, Paul
NIAMS
Bldg. 10
Room 9N244
9000 Rockville Pike
Bethesda, MD 20892
Tel: (301)496-1474

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community
Tel: (919) 552-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

Myositis Support Group at the Hospital for Special Surgery
Hospital for Special Surgery
2nd Floor Conference Center, Room A
535 East 70th Street
New York, NY 10021
Tel: (212)774-7623
Fax: (212)774-2333
Email: fischbeins@hss.edu
Internet: http://www.hss.edu/MyositisGroup.asp

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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