Progressive Supranuclear Palsy

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Progressive Supranuclear Palsy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Nuchal Dystonia Dementia Syndrome
  • PSP
  • Steele-Richardson-Olszewski Syndrome

Disorder Subdivisions

  • None

General Discussion

Progressive supranuclear palsy (PSP) is a rare degenerative neurological disorder characterized by loss of balance and impaired walking; loss of control of voluntary eye movement, especially in the downward direction; abnormal muscle tone (rigidity); speech difficulties (dysarthria); and problems related to swallowing and eating (dysphagia). Affected individuals frequently experience personality changes and cognitive impairment. Symptoms typically begin in one's 60s, but can start as early as the 40s. The exact cause of progressive supranuclear palsy is unknown. PSP is often misdiagnosed as Parkinson's disease, Alzheimer's disease, or other neurodegenerative disorders.

Resources

WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
USA
Tel: (212)875-8312
Fax: (212)875-8389
Email: wemove@wemove.org
Internet: http://www.wemove.org

CurePSP: Society for Progressive Supranuclear Palsy
Executive Plaza III
11350 McCormick Road, Suite 906
Hunt Valley, MD 21031
Tel: (410)785-7004
Fax: (410)785-7009
Tel: (800)457-4777
Email: info@curepsp.org
Internet: http://www.psp.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

Progressive Supranuclear Palsy (PSP Europe) Association
PSP House
167 Watling Street West
Towcester
Northamptonshire, Intl NN12 6BX
United Kingdom
Tel: 01327 322410
Fax: 01327 322412
Email: psp@pspeur.org
Internet: http://www.pspeur.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

National Parkinson Foundation, Inc.
1501 NW 9th Ave/Bob Hope Road
Miami, FL 33136-1494
Tel: (305)243-6666
Fax: (305)243-5595
Tel: (800)327-4545
Email: contact@parkinson.org
Internet: http://www.parkinson.org

UCSF Memory and Aging Center
350 Parnassus Avenue
Suite 706
San Francisco, CA 94117
Tel: (415)476-6800
Fax: (415)476-4800
Internet: http://memory.ucsf.edu

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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