Von Willebrand Disease

National Organization for Rare Disorders, Inc.

It is possible that the main title of the report Von Willebrand Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.


  • vWD

Disorder Subdivisions

  • Angiohemophilia
  • Constitutional Thrombopathy
  • Minot-Von Willebrand Disease
  • Pseudohemophilia
  • Vascular Hemophilia
  • Willebrand-Juergens Disease
  • Von Willebrand disease type I
  • Von Willebrand disease type II
  • Von Willebrand disease type III

General Discussion

Von Willebrand disease (vWD) is an inherited bleeding disorder resulting in prolonged bleeding. Certain specialized proteins called clotting factors aid the blood to clot. Individuals with von Willebrand disease have a defect in or deficiency of one of these proteins known as von Willebrand factor. They may also have low levels of an additional factor known as factor VIII.

Deficient or defective von Willebrand factor results in improper functioning of platelets, specialized red blood cells that mass together to form clots to stop bleeding. In individuals with von Willebrand disease, platelets do not stick to holes in blood vessels and bleeding is prolonged.

Von Willebrand disease is inherited as an autosomal dominant or recessive trait.


National Hemophilia Foundation
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Tel: (212)328-3737
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Email: handi@hemophilia.org
Internet: http://www.hemophilia.org

Canadian Hemophilia Society
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Suite 505
Quebec, H3A 1K2
Tel: 5148480503
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Email: chs@hemophilia.ca
Internet: http://www.hemophilia.ca

NIH/National Heart, Lung and Blood Institute Information Center
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Bethesda, MD 20824-0105
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Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov

World Federation of Hemophilia
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Quebec, Intl H3G 1T7
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Email: wfh@wfh.org
Internet: http://www.wfh.org

Hemophilia Federation of America
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Washington, DC 20003
Tel: (202)675-6984
Fax: (202)675-6983
Tel: (800)230-9797
Email: info@hemophiliafed.org
Internet: http://www.hemophiliafed.org

MUMS National Parent-to-Parent Network
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Tel: (877)336-5333
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Genetic and Rare Diseases (GARD) Information Center
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Tel: (301)251-4925
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Tel: (888)205-2311
TDD: (888)205-3223
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Madisons Foundation
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Los Angeles, CA 90024
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Internet: http://www.madisonsfoundation.org

Irsh Haemophilia Society
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Tel: +353 (0)1 657 99 00
Fax: +353 (0)1 657 99 01
Email: info@haemophilia.ie
Internet: http://www.haemophilia.ie/

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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