Lupus

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Lupus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Disseminated lupus erythematosus
  • Lupus erythematosus

Disorder Subdivisions

  • Systemic lupus erythematosus (SLE_
  • Discoid lupus erythematosus (DLE)
  • Drug-induced lupus erythematosus

General Discussion

Lupus is a chronic, inflammatory autoimmune disorder affecting the connective tissue. In autoimmune disorders, the body's own immune system attacks healthy cells and tissues causing inflammation and malfunction of various organ systems. In lupus, the organ systems most often involved include the skin, kidneys, blood and joints. Many different symptoms are associated with lupus, and most affected individuals do not experience all of the symptoms. In some cases, lupus may be a mild disorder affecting only a few organ systems. In other cases, it may result in serious complications.

There are at least three forms of lupus: the classic form, systemic lupus erythematosus; a form that only affects the skin, discoid lupus erythematosus; and drug-induced lupus erythematosus. The term lupus is most often used to denote systemic lupus erythematosus.
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Resources

American Juvenile Arthritis Organization
Arthritis Foundation, National Office
1330 West Peachtree Street
Atlanta, GA 30309
USA
Tel: (404)872-7100
Fax: (404)872-9559
Tel: (800)568-4045
Email: help@arthritis.org
Internet: http://www.arthritis.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Lupus Foundation of America, Inc.
2000 L Street NW
Suite 710
Washington, DC 20036
USA
Tel: (202)349-1155
Fax: (202)349-1156
Tel: (800)558-0121
Email: info@lupus.org
Internet: http://www.lupus.org

Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info

Lupus Canada
3555 14th Avenue, Unit #3,
Markham
Ontario, L3R 0H5
Canada
Tel: (905) 513-0004
Fax: (905) 513-9516
Tel: (800) 661-1468
Email: info@lupuscanada.org
Internet: http://www.lupuscanada.org

Vasculitis of the Central Nervous System
vasculitisoftheCNS@yahoogroups.com
Tel: (770)978-5636
Email: SunnyBrook222@aol.com
Internet: http://www.VasculitisoftheCNS@yahoogroups.com

Eastern Paralyzed Veterans Association
http://au.groups.yahoo.com/group/Erythema Nodosum/
Email: EryhemNodosum@yahoogroups.com.au
Internet: http://www.au.groups.yahoo.com/group/ErythemaNodosum

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Cicatricial Alopecia Research Foundation
PO Box 64158
Los Angeles, CA 90064
USA
Tel: (310)475-2419
Fax: (310)475-2419
Email: info@carfintl.org
Internet: http://www.carfintl.org

Erythema Nodosum Yahoo Support Group
Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/

CNS Vasculitis Foundation
9930 Morningfield
San Antonio, TX 78250-3743
USA
Tel: (210)523-8234
Email: info@cnsvf.org
Internet: http://www.cnsvf.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary
Alberta
T2R 1B7
Canada
Tel: 403-228-7956
Fax: 403-228-7853
Tel: 888-242-9182
Email: lupuslsa@shaw.ca
Internet: www.lupus.ab.ca

Jack Miller Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5800
Fax: (773)702-5577
Internet: http://millercenter.uchicago.edu

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

APS Foundation of America, Inc
PO Box 801
624 North 10th Street
Suite 4
La Crosse, WI 54602-0801
Tel: (608)782-2626
Fax: (608)782-6569
Email: apsfa@apsfa.org
Internet: http://www.apsfa.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community
Tel: (919) 552-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

Kidney & Urology Foundation of America, Inc.
152 Madison Ave.
Suite 201
New York, NY 10016
Tel: (212)629-9770
Fax: (212)629-5652
Tel: (800)633-6628
Email: info@kidneyurology.org
Internet: http://www.kidneyurology.org

Cogan's Contact Network
PO Box 145
Freehold, NJ 07728-0145
USA
Tel: (574)258-0804
Fax: (732)761-9809
TDD: (732)761-9809
Email: uscogans@juno.com
Internet: http://www.coganssyndrome.info/

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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