Syringobulbia

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Syringobulbia is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Syringobulbia is a neurological disorder characterized by a fluid-filled cavity (syrinx) within the spinal cord that extends to involve the brainstem (medulla). It usually occurs as a slit-like gap within the lower brainstem that may affect one or more of the cranial nerves, causing facial palsies of various kinds. In addition, sensory and motor nerve pathways may be affected by compression and/or interruption. This disorder is intimately associated with syringomyelia, in which the syrinx is limited to the spinal cord, and to the Chiari I malformation.

Resources

American Syringomyelia & Chiari Alliance Project Inc.
300 N. Green Street, Suite 412
PO Box 1586
Longview, TX 75606-1586
Tel: (903)236-7079
Fax: (903)757-7456
Tel: (800)272-7282
Email: info@asap.org
Internet: http://www.asap.org

National Spinal Cord Injury Association
6701 Democracy
Suite 300-9
Bethesda, MD 20817
USA
Tel: (301)214-4006
Fax: (301)881-9817
Tel: (800)962-9629
Email: info@spinalcord.org
Internet: http://www.spinalcord.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

American Spinal Injury Association
345 East Superior
Room 1436
Chicago, IL 60611
Tel: (312)238-6207
Fax: (312)238-0869
Email: mars@northwestern.edu

World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square, PA 19073
Tel: (610)353-4737
Email: internautbhm2@comcast.net
Internet: http://www.wacma.com

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Christopher S. Burton Syringomyelia Foundation, Inc.
2129 Nova Village Drive
Fort Lauderdale, FL 33317
Tel: (954)727-5137
Fax: (954)636-2409
Email: info@thesmfoundation.org
Internet: http://www.thesmfoundation.org and http://www.SyringomyeliaFoundation.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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