Romano Ward Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Romano Ward Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Long QT Syndrome without Deafness
  • Autosomal Dominant Long QT Syndrome
  • Long QT Syndrome Type 1
  • LQTS1
  • RWS
  • Romano-Ward Long QT Syndrome
  • Ward-Romano Syndrome

Disorder Subdivisions

  • None

General Discussion

Romano-Ward syndrome is an inherited heart (cardiac) disorder characterized by abnormalities affecting the electrical system of the heart. The severity of Romano-Ward syndrome varies greatly from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Romano-Ward syndrome is inherited as an autosomal dominant trait.
.

Resources

International Long QT Syndrome Registry
P.O. Box 653
University of Rochester Medical Center
Rochester, NY 14642-8653
Tel: (585)276-0016
Fax: (585)273-5283

American Heart Association
7272 Greenville Avenue
Dallas, TX 75231-4596
Tel: (214)373-6300
Fax: (214)373-0268
Tel: (800)242-8721
Email: Review.personal.info@heart.org
Internet: http://www.americanheart.org

Sudden Arrhythmia Death Syndromes Foundation
508 E South Temple #20
Salt Lake City, UT 84102
USA
Tel: (801)531-0937
Fax: (801)531-0945
Tel: (800)786-7723
Email: sads@sads.org
Internet: http://www.sads.org

NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov

European Long QT Syndrome Information Center
Ronnerweg 2
Nidau, Intl 2560
Switzerland
Tel: 0041794741535
Email: info@qtsyndrome.ch
Internet: http://www.qtsyndrome.ch/index.html

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

HOPE (The Heart of Pediatric Electrophysiology)
PO Box 519
Park Ridge, NJ 07565
Tel: (201)505-9383
Fax: (201)505-0920
Tel: (877)394-4673
Email: info@heartbeatsofhope.org, info@timothysyndrome.org
Internet: http://www.heartbeatsofhope.org

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

related physicians

related services

Bon Secours International| Sisters of Bon Secours USA| Bon Secours Health System

This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. Privacy Policy. How this information was developed to help you make better health decisions.