Transverse Myelitis

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Transverse Myelitis is not the name you expected.

Disorder Subdivisions

  • Ascending Myelitis
  • Brown-Sequard Syndrome
  • Concussion Myelitis
  • Foix-Alajouanine Myelitis
  • Subacute Necrotizing Myelitis
  • Funicular Myelitis
  • Systemic Myelitis

General Discussion

Transverse myelitis is a neurological disorder of the spine caused by inflammation across the spinal cord. It is sometimes associated with the term myelopathy, which refers to any disorder of the spinal cord. However, transverse myelitis is a more specific term for inflammation (myelitis) across the width of the spinal cord (transverse) that results in changed function below this level while function remains normal above. Symptoms are related to movement and sensory functions. This disorder occurs in both adults and children, and typically begins with a rather rapid development of symptoms over the course of several hours, days, or weeks. Symptoms may include lower back pain, weakness in the legs and arms, sensory disturbance, spasms leading to gradual paralysis, and bowel or bladder disfunction.

In most cases, this is a disorder that occurs on a single occasion, although a small number of individuals may experience recurrence. The initial occurrence may be followed, over a period of several weeks or months, by a period of recovery, although this does not happen in all cases. There is considerable variability in the degree of recovery achieved. Transverse myelitis is sometimes associated with other diseases, including systemic autoimmune diseases like systemic lupus erythematosis and sarcoidosis. It may be occur following viral or bacterial infections, especially those associated with a rash, spinal cord injuries, or immune reactions.

Resources

Transverse Myelitis Association
1787 Sutter Parkway
Powell, OH 43065-8806
USA
Tel: (614)766-1806
Email: ssiegel@myelitis.org
Internet: http://www.myelitis.org

Spinal Cord Society
19051 County Hwy. 1
Fergus Falls, MN 56537
USA
Tel: (218)739-5252
Fax: (218)739-5262
Email: scs-nc@nc.rr.com
Internet: http://www.spinalcordsociety.com

American Paraplegia Society
75-20 Astoria Boulevard
Jackson Heights, NY 11370-1177
USA
Tel: (718)803-3782
Fax: (718)803-0414
Email: aps@UnitedSpinal.ORG
Internet: http://www.apssci.org

National Spinal Cord Injury Association
6701 Democracy
Suite 300-9
Bethesda, MD 20817
USA
Tel: (301)214-4006
Fax: (301)881-9817
Tel: (800)962-9629
Email: info@spinalcord.org
Internet: http://www.spinalcord.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Christopher Reeve Paralysis Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
USA
Tel: (973)379-2690
Fax: (973)912-9433
Tel: (800)225-0292
Email: prc@ChristopherReeve.org
Internet: http://www.christopherreeve.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Devic's Support
107 Woodside Manor
Carmichaels, PA 15320
Email: devics-support@googlegroups.com
Internet: http://groups.google.com/group/Devics-support?pli=1

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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