Narcolepsy

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Narcolepsy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Gelineau's Syndrome
  • Paroxysmal Sleep
  • Sleep Epilepsy
  • Narcoleptic syndrome

Disorder Subdivisions

  • None

General Discussion

Narcolepsy is a rare disorder characterized by chronic, excessive attacks of drowsiness during the day, sudden extreme muscle weakness (cataplexy), hallucinations, paralysis while sleeping, and disrupted sleep during the night. Attacks of drowsiness may persist only a few minutes or last for hours, and may vary in frequency from a few incidents to several during a single day. Although the exact cause of narcolepsy is not known, many researchers suspect that genetic factors play a role in the development of the disorder.
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Resources

National Sleep Foundation
1522 K Street
Suite 500
Washington, D.C. 20005
Tel: (202)347-3471
Fax: (202)347-3472
Email: nsf@sleepfoundation.org
Internet: http://www.sleepfoundation.org

Narcolepsy Network, Inc.
110 Ripple Lane
North Kingstown, RI 02852
USA
Tel: (401)667-2523
Fax: (401)633-6567
Tel: (888)292-6522
Email: narnet@narcolepsynetwork.org
Internet: http://www.narcolepsynetwork.org

American Sleep Disorders Association
1610 14th Street NW
Suite 300
Rochester, MN 55901
Tel: (507)287-6006
Fax: (507)287-6008
Email: asda@millcomm.com

Center for Research in Sleep Disorders
1275 East Kemper Rd.
Cincinnati, OH 45246
Tel: (513)671-3101
Fax: (513)671-4159
TDD: (311)111-6111
Email: ggaz@tristatesleep.com

Narcolepsy Institute
Montefiore Medical Center
111 East 210th Street
Bronx, NY 10467-2490
Tel: (718)920-6799
Fax: (718)654-9580
Email: MGoswami@NarcolepsyInstitute.org
Internet: http://www.narcolepsyinstitute.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

MedicAlert Foundation International
2323 Colorado Avenue
Turlock, CA 95382
USA
Tel: (209)669-2401
Fax: (209)669-2456
Tel: (888)633-4298
Email: Inquiries@medicalert.org
Internet: http://www.medicalert.org

Center for Narcolepsy Research
College of Nursing (M/C 802)
The University of Illinois at Chicago
845 South Damen Avenue
Room 215
Chicago, IL 60612-7350
Tel: (312)996-5176
Fax: (312)996-7008
Email: narcolep@listserve.uic.edu
Internet: http://www.uic.edu/depts/cnr/cnrright.htm

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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