Relapsing Polychondritis

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Relapsing Polychondritis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Chronic Atrophic Polychondritis
  • Generalized or Systemic Chondromalocia
  • Meyenburg-Altherr-Uehlinger Syndrome
  • Relapsing Perichondritis
  • von Meyenburg Disease

Disorder Subdivisions

  • None

General Discussion

Relapsing polychondritis is a rare degenerative disease characterized by recurrent inflammation of the cartilage in the body. Deterioration of the cartilage may affect any site of the body where cartilage is present. Ears, larynx and trachea may become "floppy," and the bridge of the nose can collapse into a "saddlenose" shape. The aortic heart valve may also be affected.
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Resources

Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info

Polychondritis/Rheumatoid Arthritis Clinic
David Trentham M.D.
Division of Rheumatology
Beth Israel Hospital
330 Brookline Avenue
Boston, MA 02215
Tel: (617)735-2560

Polychondritis Educational Society, Ltd.
2581 W. County 18th Street
Somerton, AZ 85350
USA
Tel: (928)627-1979
TDD: (928)627-1521
Email: Diana_R@polychondritis.com OR Desarae@polychondritis.com
Internet: http://www.Polychondritis.com

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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