Keratoconus

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Keratoconus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Conical Cornea
  • KC

Disorder Subdivisions

  • None

General Discussion

Keratoconus is a non-inflammatory eye (ocular) condition characterized by progressive changes of the shape of the cornea. The cornea is the thin-walled, "dome-shaped" transparent region forming the front of the eyeball; it serves as a protective covering and helps to focus or bend (refract) light waves onto the retina at the back of the eye. In those with Keratoconus, slowly progressive thinning of the cornea causes it to protrude forward in a conical shape, leading to blurry vision and other vision problems. Keratoconus often begins at puberty. Although the specific underlying cause of the condition is unknown, investigators indicate that genetic factors may play some role. In addition, in some cases, Keratoconus may occur in association with a variety of other disorders.
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Resources

National Association for Visually Handicapped
22 West 21st Street
New York, NY 10010
USA
Tel: (212)889-3141
Fax: (212)727-2931
Email: staff@navh.org
Internet: http://www.navh.org

Eye Bank Association of America
1015 18th Street, NW
Suite 1010
Washington, DC 20036
Tel: (202)775-4999
Fax: (202)429-6036
Email: info@restoresite.org
Internet: http://www.restoresight.org

NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov/

National Keratoconus Foundation
6222 Wilshire Blvd.
Ste. 260
Los Angeles, CA 90048
Tel: (310)623-4466
Fax: (310)423-0163
Tel: (800)521-2524
Email: info@nkcf.org
Internet: http://www.nkcf.org

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Cornea Research Foundation of America
9002 North Meridian Street
Ste. 212
Indianapolis, IN 46260
Tel: (317)844-5610
Fax: (317)814-2806
Tel: (800)317-3937
Email: elainevoci@cornea.org
Internet: http://www.cornea.org

Corneal Dystrophy Foundation
6066 McAbee Rd.
San Jose, CA 95120
USA
Tel: (866)807-8965
Fax: (408)490-2775
Email: exedir@cornealdystrophyfoundation.org
Internet: http://www.cornealdystrophyfoundation.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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