Sjogren Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Sjogren Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Dacryosialoadenopathia atrophicans
  • Gougerot-Houwer-Sjogren
  • Gougerot-Sjogren
  • Keratoconjunctivitis Sicca
  • Keratoconjunctivitis sicca-xerostomia
  • Secreto-inhibitor-xerodermostenosis
  • Sicca Syndrome

Disorder Subdivisions

  • None

General Discussion

Sjogren syndrome is an autoimmune disorder characterized by degeneration of the mucus-secreting glands, particularly the tear ducts of the eyes (lacrimal) and saliva glands of the mouth. Autoimmune disorders are caused when the body's natural defenses (antibodies, lymphocytes, etc.) against invading organisms suddenly begin to attack healthy tissue. Sjogren syndrome is also associated with inflammatory disorders such as arthritis or lupus.

Resources

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Sjogren's Syndrome Foundation, Inc.
6707 Democracy Boulevard
Suite 325
Bethesda, MD 20817
Tel: (301)530-4420
Fax: (301)530-4415
Tel: (800)475-6473
Email: tms@sjogrens.org
Internet: http://www.sjogrens.org

Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
USA
Tel: (404)965-7627
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info

NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov/

NIH/National Oral Health Information Clearinghouse
1 NOHIC Way
Bethesda, MD 20892-3500
USA
Tel: (301)402-7364
Fax: (301)907-8830
TDD: (301)656-7581
Email: nohic@nidcr.nih.gov
Internet: http://www.nohic.nidcr.nih.gov

Swedish Sjogren's Syndrome Association
Inger Siwersson,
SE Box 19079
Malmo, Intl 200 73
Sweden
Tel: 0046-46-12-18-20
Email: inger@sjogrensyndrom.se
Internet: http://www.sjogrensyndrom.se

Sjogren's Syndrome Association, Inc. / Association du Syndrome de Sjogren Inc.
3155 Hochelaga,
Suite 001
Montreal
Quebec, H1W 1G4
Canada
Tel: 5149343666
Fax: 5149341241
Tel: 877-934-3666
Email: sjogren.montreal@qc.aira.com

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

International Painful Bladder Foundation
Burgemeester Le Fèvre de Montignylaan 73
Rotterdam, 3055 NA
The Netherlands
Tel: +31-10 4613330
Fax: +31-10 4613330
Email: info@painful-bladder.org
Internet: http://www.painful-bladder.org

CNS Vasculitis Foundation
9930 Morningfield
San Antonio, TX 78250-3743
USA
Tel: (210)523-8234
Email: info@cnsvf.org
Internet: http://www.cnsvf.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary
Alberta
T2R 1B7
Canada
Tel: 403-228-7956
Fax: 403-228-7853
Tel: 888-242-9182
Email: lupuslsa@shaw.ca
Internet: www.lupus.ab.ca

Jack Miller Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5800
Fax: (773)702-5577
Internet: http://millercenter.uchicago.edu

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: isn@sclero.org
Internet: http://www.sclero.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community
Tel: (919) 552-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

Cogan's Contact Network
PO Box 145
Freehold, NJ 07728-0145
USA
Tel: (574)258-0804
Fax: (732)761-9809
TDD: (732)761-9809
Email: uscogans@juno.com
Internet: http://www.coganssyndrome.info/

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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