Lymphatic Malformations

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Lymphatic Malformations is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Cystic Hygromas, Included
  • LMs
  • Lymphangiomas

Disorder Subdivisions

  • None

General Discussion

Lymphatic malformations (LMs) are abnormalities of lymphatic vessels that have sometimes been referred to as lymphangiomas. They arise due to defects during embryonic development, resulting in abnormal, localized or generalized lesions that may vary in size, extent, and severity. LMs typically appear early in life, with most apparent at birth or during infancy or early childhood. Although LMs may develop in many different regions, common locations include the face and neck, the torso, under the arms (axillae), or the extremities.
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Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Cystic Hygroma Support Group
55 Jewel Walk
Bewbush
Crawley, Intl RH11 8BH
United Kingdom
Tel: 01293 571 545
Fax: 01444 461 177

Lymphovenous Canada
8 Silver Ave
Toronto
Ontario, Intl M6R 1X8
Canada
Tel: 416-533-2428
Email: info@lymphovenous-canada.ca
Internet: http://www.lymphovenous-canada.ca

Lymphatic Research Foundation
40 Garvies Point Road
Glen Cove, NY 11542
USA
Tel: (516)625-9675
Fax: (516)625-9410
Email: lrf@lymphaticresearch.org
Internet: http://www.lymphaticresearch.org

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

National Organization of Vascular Anomalies
PO Box 38216
Greensboro, NC 27438-8216
Email: Khall@mail.novanews.org
Internet: http://www.novanews.org

Lymphangiomatosis & Gorham's Disease Alliance
19919 Villa Lante Place
Boca Raton, FL 33434
Tel: (561)441-9766
Email: info@lgdalliance.org
Internet: http://www.lgdalliance.org/

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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