Myositis, Inclusion Body

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Myositis, Inclusion Body is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • IBM

Disorder Subdivisions

  • Inflammatory Myopathy

General Discussion

Inclusion body myositis (IBM) is a rare inflammatory muscular disorder that usually becomes apparent during adulthood. The disorder presents as slow progressive weakness and withering away (atrophy) of the muscles (myositis), especially of the arms and legs. Inclusion body myositis frequently is diagnosed when a patient is unresponsive to therapy prescribed for polymyositis.

IBM is characterized by the gradual onset (over months or years) of muscle fatigue and weakness; a clear tendency to strike men more frequently than women; and affecting both the muscles closest to the body's trunk (proximal) and those farthest from the trunk (distal). Onset is usually after age 50, although it may occur earlier.
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Resources

Myositis Association
1737 King Street
Suite 600
Alexandria, VA 22314
USA
Tel: (703)299-4850
Fax: (703)535-6752
Tel: (800)821-7356
Email: tma@myositis.org
Internet: http://www.myositis.org

Muscular Dystrophy Association
3300 E. Sunrise Dr
Tucson, AZ 85718
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: mda@mdausa.org
Internet: http://www.mda.org/

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Myositis Support Group at the Hospital for Special Surgery
Hospital for Special Surgery
2nd Floor Conference Center, Room A
535 East 70th Street
New York, NY 10021
Tel: (212)774-7623
Fax: (212)774-2333
Email: fischbeins@hss.edu
Internet: http://www.hss.edu/MyositisGroup.asp

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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