Carcinoid syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Carcinoid syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • carcinoid cancer
  • carcinoid disease
  • functioning carcinoid
  • carcinoid apudoma
  • functioning argentaffinoma
  • neuroendocrine tumor carcinoid type
  • malignant carcinoid syndrome

Disorder Subdivisions

  • None

General Discussion

Carcinoid syndrome is a disease consisting of a combination of symptoms, physical manifestations, and abnormal laboratory chemical findings caused by a carcinoid tumor. A carcinoid tumor is a tumor that secretes large amounts of the hormone serotonin, along with a number of other active peptides. These tumors usually arise in the gastrointestinal tract and from there may migrate (metastasize) to the liver. Carcinoid tumors also sometimes develop in the lung.

Only about 10% of the people with carcinoid tumors will develop the carcinoid syndrome. Major symptoms of this syndrome include hot, red facial flushing, diarrhea and wheezing. Carcinoid syndrome occurs when the tumor produces excessive amounts of serotonin in an individual with liver metastases. In patients who have no spread to the liver, the serotonin released by an intestinal tumor will be broken down to an inactive substance; thus, carcinoid syndrome does not occur.
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Resources

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: (404)320-3333
Tel: (800)227-2345
TDD: (866)228-4327
Internet: http://www.cancer.org

Carcinoid Cancer Foundation, Inc.
333 Mamaroneck Avenue #492
White Plains, NY 10605
USA
Tel: (914)683-1001
Fax: (914)683-0183
Tel: (888)722-3132
Email: carcinoid@optonline.net
Internet: http://www.carcinoid.org

Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Tel: (520)625-5495
Fax: (615)526-4921
Email: sharon.lane@rare-cancer.org
Internet: http://www.rare-cancer.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Caring for Carcinoid Foundation
198 Tremont Street
P.O. Box 456
Boston, MA 02116
Tel: (617)848-3977
Email: info@caringforcarcinoid.org
Internet: http://www.caringforcarcinoid.org

Friends of Cancer Research
2231 Crystal Drive
Suite 200
Arlington, VA 22202
Tel: (703)302-1503
Fax: (703)302-1568
Email: info@focr.org
Internet: http://www.focr.org

Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: contactus@cancer.net
Internet: http://www.cancer.net/patient

Wellness Community
919 18th Street N.W.
Suite 54
Washington, DC 20006
Tel: (202)659-9709
Fax: (202)659-9301
Tel: (888)793-9355
Email: help@thewellnesscommunity.org
Internet: http://www.thewellnesscommunity.org

Lance Armstrong Foundation
2201 E. Sixth Street
Austin, TX 78702
Tel: (512)236-8820
Fax: (512)236-8482
Tel: (877)236-8820
Email: media@livestrong.org
Internet: http://www.livestrong.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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