Opsoclonus-Myoclonus Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Opsoclonus-Myoclonus Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Myoclonic Encephalopathy, Kinsbourne Type
  • Opsoclonic Encephalopathy
  • Kinsbourne Syndrome
  • Dancing Eyes-Dancing Feet

Disorder Subdivisions

  • None

General Discussion

Opsoclonus-myoclonus syndrome is a rare movement disorder. It is characterized by associated ocular, behavioral, sleep, and language disturbances. The onset is usually abrupt, often severe, and can become chronic.

Resources

Opsoclonus-Myoclonus Support Network, Inc.
2116 Casa Linda Dr.
West Covina, CA 91791
USA
Tel: (626)315-8125
Email: sandragreenberg@hotmail.com
Internet: http://www.omsupportnetwork.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

National Pediatric Myoclonus Center
SIU School of Medicine
Dept. of Neurology, Div. of Ped. Neurology
PO Box 19643
Springfield, IL 62794-9643
USA
Tel: (217)545-7635
Fax: (217)545-1903
Email: oms@siumed.edu
Internet: http://www.omsusa.org

Dancing Eye Syndrome Support Trust
78 Quantock Road
Worthing
West Sussex, Intl BN13 2HQ
United Kingdom
Tel: 01925 654654
Fax: 01925 654654
Email: support@dancingeyes.org.uk
Internet: http://www.dancingeyes.org.uk

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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