Tethered Spinal Cord Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Tethered Spinal Cord Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Congenital Tethered Cervical Spinal Cord Syndrome
  • Occult Spinal Dysraphism Sequence
  • Tethered Cervical Spinal Cord Syndrome
  • Tethered Cord Malformation Sequence
  • Tethered Cord Syndrome

Disorder Subdivisions

  • None

General Discussion

Tethered Spinal Cord Syndrome is a disorder characterized by progressive neurological deterioration that results from compression of the lowermost bundle of nerves of the spinal cord (cauda equina). It is most commonly associated with a defective closing of the neural tube (precursor of the spinal column) during embryonic development (Spina Bifida).

Resources

Spina Bifida Association of America
4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226
Tel: (202)944-3285
Fax: (202)944-3295
Tel: (800)621-3141
Email: sbaa@sbaa.org
Internet: http://www.sbaa.org

International Federation for Spina Bifida and Hydrocephalus
Cellebroersstraat 16
Brussels, B1000
Belgium
Tel: +32 (0)2 502 0413
Fax: +32 (0)2 502 1129
Email: info@ifglobal.org
Internet: http://www.ifglobal.org

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

Spina Bifida and Hydrocephalus Association of Canada
Suite 428-167
av. Lombard Avenue
Winnipeg,, R3B 0V3
Canada
Tel: 204-925-3650
Fax: 204-925-3654
Tel: 800-565-9488
Email: spinab@mts.net
Internet: http://www.sbhac.ca

Birth Defect Research for Children, Inc.
800 Celebration Ave, Suite 225
Orlando, FL 34747
USA
Tel: (407)566-8304
Fax: (407)895-0824
Email: staff@birthdefects.org
Internet: http://www.birthdefects.org

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows, IL 60008-3852
Tel: (847)378-0500
Fax: (847)378-0600
Tel: (888)566-2267
Email: info@aans.org
Internet: http://www.NeurosurgeryToday.org and http://www.aans.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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