Eosinophilia Myalgia

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Eosinophilia Myalgia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Eosinophilic Myalgia
  • L-Tryptophan Disease
  • Tryptophan Disease
  • Tryptophan Syndrome
  • Toxic oil syndrome

Disorder Subdivisions

  • None

General Discussion

Eosinophilia Myalgia Syndrome is associated with the ingestion of large amounts of contaminated L-tryptophan, a dietary supplement often sold in health food stores. The contaminant remains unknown. It is a disease of abrupt onset causing severe, disabling, chronic muscle pain, skin symptoms and other neurotoxic reactions . Diagnosis is not easy and depends on finding unusually high levels of eosinophils (circulating white blood cells) over a period of at least six months.

Resources

Centers for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
Tel: (404)639-3534
Tel: (800)311-3435
Email: http://www.cdc.gov/netinfo.htm
Internet: http://www.cdc.gov/

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/Health_Info

National Eosinophilia Myalgia Syndrome Network
Jann Heston, President
PO Box 3016
155 Delaware Avenue
Lexington, OH 44904-1212
USA
Tel: (614)583-5720
Fax: (614)737-7384
Email: NEMSN2005@aol.com
Internet: http://www.NEMSN.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Campaign Urging Research for Eosinophilic Disease (CURED)
2937 Bayberry Dr.
Buffalo Grove, IL 60089
Tel: (847)793-0071
Email: ellyn@curedfoundation.org
Internet: http://www.curedfoundation.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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