Chronic Inflammatory Demyelinating Polyneuropathy

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Chronic Inflammatory Demyelinating Polyneuropathy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • CIDP
  • Chronic Relapsing Polyneuropathy

Disorder Subdivisions

  • None

General Discussion

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare neurological disorder in which there is inflammation of nerve roots and peripheral nerves and destruction of the fatty protective covering (myelin sheath) over the nerves. This disorder causes weakness, paralysis and/or impairment in motor function, especially of the arms and legs (limbs). Sensory loss may also be present causing numbness, tingling, or prickling sensations. The motor and sensory impairments usually affect both sides of the body (symmetrical), and the degree of severity may vary. The course of CIDP may also vary from case to case. Some affected individuals may follow a slow steady pattern of symptoms while others may have symptoms that wax and wane, with the most severe symptoms occurring after many months or a year or more. In contrast to Acute Inflammatory Demyelinating Neuropathy and other forms of Guillain Barre Syndrome, most patients cannot identify a preceding viral or infectious illness. In most cases, there is no family history of other similar disorders or disease affecting many nerves (polyneuropathy).
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Resources

GBS/CIDP Foundation International
The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072
USA
Tel: (610)667-0131
Fax: (610)667-7036
Tel: (866)224-3301
Email: info@gbs-cidp.org
Internet: http://www.gbs-cidp.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

National Institute of Neurological Disorders and Stroke (NINDS)
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Email: me20t@nih.gov
Internet: http://www.ninds.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Guillain-Barre Syndrome Foundation of Canada, Inc.
PO Box 42016
2852 John Street
Markham, Ontario, L3R 5R0
Canada
Tel: 905-640-0073
Fax: 905-640-9815
Email: keast@sprint.ca
Internet: http://www.gbs-cidp.org or http://www.gbs-cidp.org/Canada.htm

Jack Miller Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5800
Fax: (773)702-5577
Internet: http://millercenter.uchicago.edu

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)664-9259
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Bodo Grimbacher (ESID Board Member)
Division of Rheumatology and Clinical Immunology
Department of Medicine, University Hospital Freiburg
Hugstetter Strasse 55
Freiburg, D-79106
Germany
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community
Tel: (919) 552-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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