Waldmann Disease

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Waldmann Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Dysproteinemia, Familial
  • Enteropathy, Hypercatabolic Protein-Losing
  • Familial Hypoproteinemia with Lymphangietatic Enteropathy
  • Hypoproteinemia, Idiopathic
  • Intestinal Lymphangiectasia
  • Intestinal Lymphangiectasis
  • Lymphangiectasia, Primary Intestinal
  • Lymphangiectasis, Primary Intestinal
  • Lymphangiectatic Protein-Losing Enteropathy
  • Lymphedema, Neonatal due to Exudative Enteropathy
  • Protein-Losing Enteropathy Secondary to Congestive Heart Failure

Disorder Subdivisions

  • None

General Discussion

Waldmann Disease is a rare digestive disorder characterized by abnormally enlarged (dilatation) lymph vessels supplying the lining (lamina propria) of the small intestine. The main symptoms are abdominal discomfort and swelling of the limbs. The disorder may be present at birth (congenital) or acquired.

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

NIH/National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Tel: (301)654-3810
Fax: (301)907-8906
Tel: (800)891-5389
Email: nddic@info.niddk.nih.gov
Internet: http://www.niddk.nih.gov

Lymphatic Research Foundation
40 Garvies Point Road
Glen Cove, NY 11542
USA
Tel: (516)625-9675
Fax: (516)625-9410
Email: lrf@lymphaticresearch.org
Internet: http://www.lymphaticresearch.org

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: ordr@od.nih.gov
Internet: http://rarediseases.info.nih.gov/Default.aspx

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

For a Complete Report

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

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